Ataxia

Hi my name is Rita and I was born with Ataxia. It's a form of CP. Just wondering if anyone else has this. I would like to talk to anyone with a disability.

By CKarma on Wed, 11-28-12, 12:25

Welcome Rita! I saw you are new and wanted to say hi!

Hugs-
CK

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

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By ritaparke@gmail.com on Wed, 11-28-12, 16:22

Hi CK thank you. Do you have CP? Looking forward to talking more with you.

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By mailrishipal@gmail.com on Thu, 11-29-12, 09:07

which Ataxia?

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By ritaparke@gmail.com on Tue, 12-18-12, 15:17

I wasn't aware that there are more than one ataxia. I was born with a slight case of cerebal palsy. I recently had an MRI because I was falling more then usual. He diagnosed me with cerebular atrophy.

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By macmike on Mon, 12-10-12, 17:54

HI Rita,

Ataxia is a symptom, not a specific disease or diagnosis. Ataxia means clumsiness, or loss of coordination. Ataxia may affect the fingers and hands, the arms or legs, the body, speech or eye movements. This loss of coordination may be caused by a number of different medical or neurologic conditions; for this reason, it is important that a person with ataxia seek medical attention to determine the underlying cause of the symptom and to get the appropriate treatment.

My name is Michel Beaudet, I'm 51, have FA and live in Quebec, Canada. Are you member of internaf? If not come join us, International Network of Ataxia Friends is a mailing list for ataxia patients and family/friends which serves as a support group and information exchange vehicle. There's also a website full of info at http://internaf.org
For info on how to subscribe, go see, http://internaf.org/network/services.html
We also have a facebook group -> http://on.fb.me/internaFB
And for Canadians with Hereditary Ataxia we have a Facebook group -> http://on.fb.me/chataxia
Et pour les Francophones avec une Ataxie Héréditaire Il y a un groupe sur Facebook (FAH) -> http://on.fb.me/fataxieH

--
Michel Beaudet
michel.beaudet@videotron.ca
Internaf - INTERnational Network of Ataxia Friends
http://groups.yahoo.com/group/internaf
http://www.internaf.org
http://on.fb.me/internaFB
http://on.fb.me/chataxia
http://on.fb.me/FAtaxieH

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By ritaparke@gmail.com on Mon, 12-17-12, 17:42

Hi Michel, I live in the USA. I am not a member of internaf but would like to know more about it, so I will look it up. What is FA?

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By macmike on Mon, 12-17-12, 18:17

Hi Rita,

FA or FRDA = Friedreich Ataxia see http://www.mdausa.org/disease/friedreichs-ataxia/overview

If you need help subscribing just ask.

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